{"id":3521,"date":"2024-07-29T15:00:18","date_gmt":"2024-07-29T19:00:18","guid":{"rendered":"https:\/\/happylungsproject.org\/?p=3521"},"modified":"2026-03-02T10:53:09","modified_gmt":"2026-03-02T15:53:09","slug":"hlp-joins-23andme-to-launch-lung-cancer-genetics-study-to-advance-research","status":"publish","type":"post","link":"https:\/\/happylungsproject.org\/hlp-joins-23andme-to-launch-lung-cancer-genetics-study-to-advance-research\/","title":{"rendered":"The Happy Lungs Project Joins Lung Cancer Advocacy Organizations and 23andMe to Launch Lung Cancer Genetics Study to Advance Research"},"content":{"rendered":"[vc_row type=&#8221;in_container&#8221; full_screen_row_position=&#8221;middle&#8221; column_margin=&#8221;default&#8221; column_direction=&#8221;default&#8221; column_direction_tablet=&#8221;default&#8221; column_direction_phone=&#8221;default&#8221; scene_position=&#8221;center&#8221; text_color=&#8221;dark&#8221; text_align=&#8221;left&#8221; row_border_radius=&#8221;none&#8221; row_border_radius_applies=&#8221;bg&#8221; overflow=&#8221;visible&#8221; overlay_strength=&#8221;0.3&#8243; gradient_direction=&#8221;left_to_right&#8221; shape_divider_position=&#8221;bottom&#8221; bg_image_animation=&#8221;none&#8221; shape_type=&#8221;&#8221;][vc_column column_padding=&#8221;no-extra-padding&#8221; column_padding_tablet=&#8221;inherit&#8221; column_padding_phone=&#8221;inherit&#8221; column_padding_position=&#8221;all&#8221; column_element_direction_desktop=&#8221;default&#8221; column_element_spacing=&#8221;default&#8221; desktop_text_alignment=&#8221;default&#8221; tablet_text_alignment=&#8221;default&#8221; phone_text_alignment=&#8221;default&#8221; background_color_opacity=&#8221;1&#8243; background_hover_color_opacity=&#8221;1&#8243; column_backdrop_filter=&#8221;none&#8221; column_shadow=&#8221;none&#8221; column_border_radius=&#8221;none&#8221; column_link_target=&#8221;_self&#8221; column_position=&#8221;default&#8221; gradient_direction=&#8221;left_to_right&#8221; overlay_strength=&#8221;0.3&#8243; width=&#8221;1\/1&#8243; tablet_width_inherit=&#8221;default&#8221; animation_type=&#8221;default&#8221; bg_image_animation=&#8221;none&#8221; border_type=&#8221;simple&#8221; column_border_width=&#8221;none&#8221; column_border_style=&#8221;solid&#8221;][vc_row_inner column_margin=&#8221;default&#8221; column_direction=&#8221;default&#8221; column_direction_tablet=&#8221;default&#8221; column_direction_phone=&#8221;default&#8221; text_align=&#8221;left&#8221; row_position=&#8221;default&#8221; row_position_tablet=&#8221;inherit&#8221; row_position_phone=&#8221;inherit&#8221; overflow=&#8221;visible&#8221; pointer_events=&#8221;all&#8221;][vc_column_inner column_padding=&#8221;padding-3-percent&#8221; column_padding_tablet=&#8221;inherit&#8221; column_padding_phone=&#8221;inherit&#8221; column_padding_position=&#8221;all&#8221; column_element_direction_desktop=&#8221;default&#8221; column_element_spacing=&#8221;default&#8221; desktop_text_alignment=&#8221;default&#8221; tablet_text_alignment=&#8221;default&#8221; phone_text_alignment=&#8221;default&#8221; background_color=&#8221;#f68d28&#8243; background_color_opacity=&#8221;1&#8243; background_hover_color_opacity=&#8221;1&#8243; column_backdrop_filter=&#8221;none&#8221; font_color=&#8221;#ffffff&#8221; column_shadow=&#8221;none&#8221; column_border_radius=&#8221;10px&#8221; column_link_target=&#8221;_self&#8221; overflow=&#8221;visible&#8221; gradient_direction=&#8221;left_to_right&#8221; overlay_strength=&#8221;0.3&#8243; width=&#8221;1\/1&#8243; tablet_width_inherit=&#8221;default&#8221; animation_type=&#8221;default&#8221; bg_image_animation=&#8221;none&#8221; border_type=&#8221;simple&#8221; column_border_width=&#8221;none&#8221; column_border_style=&#8221;solid&#8221; column_padding_type=&#8221;default&#8221; gradient_type=&#8221;default&#8221;][vc_column_text css=&#8221;&#8221; text_direction=&#8221;default&#8221;]<span style=\"font-weight: 400;\">This study aims to build a comprehensive, open-source database of heritable genetics and patient-reported data in lung cancer.<\/span>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][vc_row_inner column_margin=&#8221;default&#8221; column_direction=&#8221;default&#8221; column_direction_tablet=&#8221;default&#8221; column_direction_phone=&#8221;default&#8221; text_align=&#8221;left&#8221; row_position=&#8221;default&#8221; row_position_tablet=&#8221;inherit&#8221; row_position_phone=&#8221;inherit&#8221; overflow=&#8221;visible&#8221; pointer_events=&#8221;all&#8221;][vc_column_inner column_padding=&#8221;no-extra-padding&#8221; column_padding_tablet=&#8221;inherit&#8221; column_padding_phone=&#8221;inherit&#8221; column_padding_position=&#8221;all&#8221; column_element_direction_desktop=&#8221;default&#8221; column_element_spacing=&#8221;default&#8221; desktop_text_alignment=&#8221;default&#8221; tablet_text_alignment=&#8221;default&#8221; phone_text_alignment=&#8221;default&#8221; background_color_opacity=&#8221;1&#8243; background_hover_color_opacity=&#8221;1&#8243; column_backdrop_filter=&#8221;none&#8221; column_shadow=&#8221;none&#8221; column_border_radius=&#8221;none&#8221; column_link_target=&#8221;_self&#8221; overflow=&#8221;visible&#8221; gradient_direction=&#8221;left_to_right&#8221; overlay_strength=&#8221;0.3&#8243; width=&#8221;1\/1&#8243; tablet_width_inherit=&#8221;default&#8221; animation_type=&#8221;default&#8221; bg_image_animation=&#8221;none&#8221; border_type=&#8221;simple&#8221; column_border_width=&#8221;none&#8221; column_border_style=&#8221;solid&#8221;][vc_column_text css=&#8221;&#8221; text_direction=&#8221;default&#8221;]<span style=\"font-weight: 400;\">The Happy Lungs Project, in collaboration with 23andMe Holding Co., a leading genetic health and biopharmaceutical company, and 20 lung cancer advocacy organizations, announced a new study to help advance research in lung cancer. The focus of the <\/span><a href=\"https:\/\/www.23andme.com\/lung-cancer\/?utm_source=collab_hlp&amp;utm_medium=email&amp;utm_campaign=us_2024jul_lcg_study\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">Lung Cancer Genetics Study<\/span><\/a><span style=\"font-weight: 400;\"> is to better understand the genetics of people with lung cancer in order to improve detection, risk reduction, and care. While recent developments in tumor genetic testing and targeted therapies have provided hope and years of survival to many lung cancer patients, lung cancer remains the <\/span><a href=\"https:\/\/www.cancer.org\/content\/dam\/cancer-org\/research\/cancer-facts-and-statistics\/annual-cancer-facts-and-figures\/2024\/2024-cancer-facts-and-figures-acs.pdf\"><span style=\"font-weight: 400;\">number one cause of cancer deaths<\/span><\/a><span style=\"font-weight: 400;\"> in both men and women in the United States. Yet, much remains unknown about the disease and its causes.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The de-identified data from the study will be made available to approved researchers, and access to the scientific database will be available to nonprofit researchers and institutions at no cost.<\/span><\/p>\n<h2><b>Sobering lung cancer statistics only tell part of the story<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">Despite advances in treatment options, lung cancer remains a critical area of unmet need:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">In 2020, lung cancer took more lives in the United States than breast, colorectal, and prostate cancers <\/span><a href=\"https:\/\/www.cancer.org\/content\/dam\/cancer-org\/research\/cancer-facts-and-statistics\/annual-cancer-facts-and-figures\/2023\/2023-cancer-facts-and-figures.pdf\"><span style=\"font-weight: 400;\">combined<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">One in 16 people in the United States will be diagnosed with lung cancer <\/span><a href=\"https:\/\/www.cancer.org\/content\/dam\/cancer-org\/research\/cancer-facts-and-statistics\/annual-cancer-facts-and-figures\/2024\/2024-cancer-facts-and-figures-acs.pdf\"><span style=\"font-weight: 400;\">in their lifetime<\/span><\/a><span style=\"font-weight: 400;\">.\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">It is estimated that <\/span><a href=\"https:\/\/www.cancer.org\/content\/dam\/cancer-org\/research\/cancer-facts-and-statistics\/annual-cancer-facts-and-figures\/2024\/2024-cancer-facts-and-figures-acs.pdf\"><span style=\"font-weight: 400;\">in 2024<\/span><\/a><span style=\"font-weight: 400;\">, 234,000 new people will be diagnosed with lung cancer in the United States.\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">While lung cancer accounts for 12% of all new cancer diagnoses, it accounts for <\/span><a href=\"https:\/\/jamanetwork.com\/journals\/jamaoncology\/fullarticle\/2773380\"><span style=\"font-weight: 400;\">20% of cancer deaths<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Despite being the deadliest cancer, lung cancer research is <\/span><a href=\"https:\/\/meetings.asco.org\/abstracts-presentations\/209631\"><span style=\"font-weight: 400;\">underfunded<\/span><\/a><span style=\"font-weight: 400;\"> compared to other cancer types.\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Early detection of lung cancer through screening can dramatically improve the long-term survival rate. <\/span><a href=\"https:\/\/www.cancer.org\/content\/dam\/cancer-org\/research\/cancer-facts-and-statistics\/annual-cancer-facts-and-figures\/2024\/2024-cancer-facts-and-figures-acs.pdf\"><span style=\"font-weight: 400;\">Only 25%<\/span><\/a><span style=\"font-weight: 400;\"> of all people diagnosed with lung cancer will survive 5 years or more, but for those whose cancer was diagnosed through annual screening by CT scan, the <\/span><a href=\"https:\/\/pubs.rsna.org\/doi\/10.1148\/radiol.231988\"><span style=\"font-weight: 400;\">20-year survival rate is 81%<\/span><\/a><span style=\"font-weight: 400;\">.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">In people diagnosed at 55 years of age or younger, lung cancer is <\/span><a href=\"https:\/\/pressroom.cancer.org\/releases?item=1262\"><span style=\"font-weight: 400;\">more common in women<\/span><\/a><span style=\"font-weight: 400;\"> than men. Among people with lung cancer who have never smoked, approximately <\/span><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC11014425\/\"><span style=\"font-weight: 400;\">two-thirds are women<\/span><\/a><span style=\"font-weight: 400;\">, making women who have not smoked more than twice as likely to develop lung cancer as men who have not smoked.<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Behind every devastating statistic are people from communities across the U.S. impacted by lung cancer. Through this collaboration, The Happy Lungs Project and other advocacy organizations, lung cancer survivors and advocates, and 23andMe hope ultimately to help advance research toward finding a cure for this disease.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cLUNGevity Foundation is excited to partner on this community-driven project,\u201d said Upal Basu Roy, Vice President of Research at LUNGevity Foundation. \u201cAs a researcher and a patient advocate, I&#8217;m most excited about how the data collected in this study could be leveraged to help patients in the future. For example, it could help researchers identify new drug targets and mechanisms for drug development or find ways to address side effects proactively.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">This study includes the following collaborators: ALK Positive, Biomarker Collaborative, BRAF Bombers, EGFR Resisters, Exon 20 Group, Free ME from Lung Cancer, GO2 for Lung Cancer, The Happy Lungs Project, International Cancer Advocacy Network, KRAS Kickers, Lung Cancer Foundation of America, Lung Cancer Research Foundation, LUNGevity Foundation, MET Crusaders, NTRKers, Oncogene Cancer Research, PDL1 Amplifieds, RET Positive, RET Renegades, The ROS1ders, and Troper Wojcicki Philanthropies.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cStudying the genetics of lung cancer can help us understand risks, improve early detection, and develop better treatments. This collaborative effort unites patients, advocates, doctors, and researchers,\u201d said Jill Feldman, patient advocate and co-founder of the EGFR Resisters. \u201cBy making the data securely accessible to researchers worldwide, the Lung Cancer Genetics Study increases our chances of breakthroughs that can save lives.\u201d<\/span><\/p>\n<h2><b>Enhancing lung cancer research<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">The 23andMe research platform will enable consented participants to come together to provide critical data for scientists studying lung cancer. Research data will include genetic information and self-reported information about each participant&#8217;s unique experiences (using responses from online surveys), as well as additional data sources such as medical records and tumor biomarker information. Through this study, advocacy organizations, advocates, and 23andMe aim to enhance research into lung cancer by bringing together a large group of people to better understand how genetics may influence lung cancer, expanding the geographic reach of the research study by enabling participation from home, and removing some of the time and cost barriers that can slow progress.\u00a0<\/span><\/p>\n<h2><b>How this study can help further research<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">The goal of the study is to recruit 10,000 people who have been diagnosed with lung cancer, with no restrictions on the type of lung cancer, stage of disease, gender, smoking status, biomarker, or other variables. The lung cancer genetics study is recruiting individuals who are 18 years or older, live in the United States, and have been diagnosed with lung cancer. Participants in the study can receive the 23andMe kits at no cost.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cThrough the launch of the Lung Cancer Genetics Study, we hope to fill an unmet need for a comprehensive database that bridges the gap between genetic, clinical, and patient-reported data,\u201d said Anne Wojcicki, Co-Founder and CEO of 23andMe. \u201cBecause lung cancer affects people from all communities, it&#8217;s important for this research to truly reflect the diversity of those impacted by the disease. This collaborative effort unites survivors, caregivers, researchers, and advocates who are all dedicated to improving the treatment and care of lung cancer.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The Lung Cancer Genetics Study is made possible by support from <\/span><a href=\"http:\/\/www.twphilanthropies.org\/\"><span style=\"font-weight: 400;\">Troper Wojcicki Philanthropies<\/span><\/a><span style=\"font-weight: 400;\"> (TWP). Troper Wojcicki Philanthropies deploys philanthropy and mission-related investments to organizations that are accelerating cancer research, tackling climate change, and advancing human rights. Since 2006, TWP has committed more than $100M to researchers, academics, and entrepreneurs committed to making a positive impact on the world. For the last 15 years, 30% of TWP\u2019s funding has been dedicated to advancing cancer research.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">For more information on the study, please see the <\/span><a href=\"https:\/\/www.23andme.com\/lung-cancer\/?utm_source=collab_hlp&amp;utm_medium=email&amp;utm_campaign=us_2024jul_lcg_study\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\">Lung Cancer Genetics Study landing page<\/span><\/a><span style=\"font-weight: 400;\">.\u00a0<\/span><\/p>\n<p><iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/uXXuDvW245o?si=DGzJuId1SggpOM_O&amp;rel=0&amp;amp\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<h2><b>About 23andMe<\/b><\/h2>\n<p><span style=\"font-weight: 400;\">23andMe is a genetics-led consumer healthcare and biopharmaceutical company empowering a healthier future. For more information, please visit <\/span><a href=\"http:\/\/www.23andme.com\/\"><span style=\"font-weight: 400;\">www.23andMe.com<\/span><\/a><span style=\"font-weight: 400;\">.<\/span>[\/vc_column_text][\/vc_column_inner][\/vc_row_inner][\/vc_column][\/vc_row]\n","protected":false},"excerpt":{"rendered":"<p>This study aims to build a comprehensive, open-source database of heritable genetics and patient-reported data in lung cancer.<\/p>\n","protected":false},"author":15,"featured_media":3517,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10,20],"tags":[],"class_list":{"0":"post-3521","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-research","8":"category-treatment"},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.1.1 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>HLP Joins 23andMe for Lung Cancer Genetics Study<\/title>\n<meta name=\"description\" content=\"This study aims to build a comprehensive, open-source database of heritable genetics and patient-reported data in lung cancer. 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